Hey, friend!

I’m Shannon— I believe in the power of story to help people walk forward in hope, no matter the circumstance. I write about faith, special needs parenting, and discipleship. So glad you’re here!

On Prayer

A great many things I do not know. Two things I know for certain: this is hard and this is not an accident.

"Be strong and courageous."

These are the Words that have become my heartbeat over the past 4 days.

"I will never leave you nor forsake you. Be strong and courageous."

God tells this to Joshua three times before his story really begins. And now, my God is whispering this to me. When our families vigil with us and take care of A so we don't have to worry, I hear His whisper. When doctors and nurses show compassion beyond what is required, I hear His whisper. As we read countless cards, texts, emails, and messages from friends and family, I hear His whisper. When I feel supernatural peace cover my soul like a blanket as I hurt and wrestle with hard questions, I hear His whisper.

"Above all, be strong and courageous."

Three times God says this, but one time the people say this to Joshua. You, dear ones, are our people. Lee and I have simply been overwhelmed by the love you have shown us, and we could not be more thankful. Many of you have asked what you can do for us. So, here is your task:


I mean it. Pray for us. Even if it's been years since you talked to God. Pray. Because so many have literally bent to their knees in prayer for us, we have heard our mighty God whisper as we love our precious baby girl and wonder what is next for her.

So, here is how you can pray:

-For K's breathing to improve. She breathes too quickly sometimes, and her oxygen levels drop a little when she gets upset. (Like during diaper changes or when it's time to eat.)

-For K to be able to manage breathing and eating through her mouth at the same time. Today, she was able to eat through her mouth for about 3 minutes, which was amazing!

-For K's genetic test results to come back quickly. Right now, they are thinking we may have them by the beginning of next week. These results could tell us her specific diagnosis, and after we have those results, the doctors will begin to make a plan for further treatments and her coming home. So, the sooner the better.

-For A to somehow understand what is going on, and for her to feel loved by Lee and me, even as we spend a good portion of every day in the NICU. We are SO thankful for our families who are making this crazy season as seamless as possible for A.

-For Lee and me to wait with peace. Also, for us to grow together as we try to figure out our new normal.

I love knowing that our K is prayed for continuously-- it reminds me that my God is Creator, and He creates with beautiful purpose.


Day One